Thursday, November 1, 2012

Update on Sam's vision

I realized that I should've posted an update on Sam's vision. October 1st he underwent an ERG test under general anesthesia. The Dr. found that the rods in his eyes are permanently damaged, but the cones are fine. This means that his blindness "probably" will not progress. Sam will never see well enough to drive a car (even with corrective lenses), but he manages his condition and functions just fine. Most people would not even guess that he has 20/400 vision and is legally blind. We are in the process of having Sam evaluated by the special education committee at school so that we can make the appropriate educational accommodations. Leo will be evaluated by the special education committee for his hyper-sensitivity to smell, noise, touch etc. Basically, Leo's environment was so lacking in stimulus that he over-reacts to sensory activities. We think that he'll become thicker skinned with some physical therapy, and the school is looking into integrating more sensory experiences in his curriculum. In the meantime, Leo is in kindergarten and he's learning to read like crazy! He recognizes most of his letters and knows many 3 letter words. Sam still struggles with the alphabet (in first grade) but some of that is probably due to his vision. Baby steps. We adore all of our children, and we'd do it again in a heartbeat! In fact, we are now foster parenting an 11 year old boy on the weekends too. He will probably never be legally free for adoption, but we love that providing him respite care is making a difference in his life.

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